Many Lit Taper Candles in the Night
In recognition of September’s designation as Pain Awareness Month, the American Pain Foundation (APF) announced yesterday the start of an online Virtual March on Washington which will include the launch of the 10,000 Voices campaign.

Designed to highlight the need for access to timely, appropriate pain management and medical care for the more than 76.5 million Americans who deal with chronic pain, the Virtual March and 10,000 Voices campaign aim to provide the resources and tools for people to raise awareness of pain issues and pain management, advocate for continued improvements in pain policy, and provide a gathering place for people to share their personal stories on pain.

“Although provisions of the National Pain Care Policy Act of 2009 were signed into law last March, we still have a long way to go to bring pain to the forefront in every community throughout the country,” said Will Rowe, chief executive officer of APF.  “We must seize this opportunity to come together and join the movement—people in pain, family members, caregivers and members of the medical community; build on the momentum of the bill; dismantle the barriers preventing better pain management; and conquer pain together.”

The Virtual March

The Virtual March runs from September 1 through September 30, 2010, and will feature:

  • the launch of the 10,000 Voices campaign—an online opportunity for people in pain, their caregivers and health care professionals to record and share their individual stories;
  • a letter-writing campaign with examples of letters on individual topics to send to lawmakers and other key officials;
  • condition-specific videos examining the challenges of life with chronic pain;
  • the Advocacy Toolkit, to help plan local awareness activities and local media outreach projects; and
  • an online guide to effective use of social media tools (Facebook, Twitter, blogs) in chronic pain advocacy and public education efforts.

“The Virtual March offers the tools to unite, empower and rally those who care about people living with pain and encourages them to be part of a movement that is making a difference in pain policy and pain management in a way that is accessible from your home or office. People can choose to participate in one activity or all,” said Rowe.

To learn more about the Virtual March and to find or post an activity that is happening in your area, visit www.APFActionNetwork.org.

American Pain Foundation Resources

APF also encourages people in pain and their caregivers to read and consult the following free publications available at the APF website:

  • “Access Matters: Making Sense of Health Coverage” provides an overview of health insurance and how to maximize your coverage;
  • “Pain Resource Guide: Getting the Help You Need” helps chronic pain patients empower themselves to create an assertive treatment plan;
  • “Treatment Options: A Guide for People Living with Pain” explains medications, psychosocial interventions, complementary approaches, rehabilitation therapies, surgical interventions and more;
  • “Target Chronic Pain” provides easy-to-use practical tools for pain assessment, management and communication.
  • “Pain Monitor,” a monthly e-newsletter, highlights news, legislative updates, research and resources for people living with pain.
  • “Exit Wounds: A Survival Guide to Pain Management for Returning Veterans and Their Families” offers veterans and their families vital information for their pain journey.

PainAid — An Online Support Community

PainAid is APF’s online support community featuring regularly-scheduled live chats each week, 100+ message boards, and “Ask-the-Expert” sessions moderated by licensed health care professionals. Membership in the online forum is free for chronic pain patients and their caregivers and loved ones. Topics range from illness-specific pain, traditional and complementary treatments, to depression and family matters, as well as financial/legal issues such as disability and workers compensation.

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What is this?

Every so often, interspersed with the “how to” tips and advice on handling chronic pain and the posts where I shamelessly try to feed my kid via affiliate marketing (and for the love of God, please, people, go buy something, will ya? In case you hadn’t heard, I’m basically homeless, people), I’ll share an excerpt from my work-in-progress titled, shockingly enough, The Tramadol Diaries.

Unless specifically stated otherwise, I advocate trying NOTHING in these posts as a means of dealing with your own chronic pain (especially without talking to your doctor first). Except the humor. That works. Also? Use what you got. Eighteen months pregnant? You have power, sister. Nobody wants to see you get angry, trust …


The Bad Docs

So, there I was. Six months pregnant, suffering from sciatica, diligently going to physical therapy session after physical therapy session and getting zero relief (although the ice massage was a fresh kind of hell that made me marvel at the medical profession’s capacity for sadism). I couldn’t sit for more than 20 minutes; I couldn’t stand for more than 10. I could walk for five minutes, but every step was pure torture.

And to top it all off, I had apparently signed on with Satan’s own OB-GYN practice. For six months, they shrugged off my weight gain about which I was worried. I’d been 20 pounds overweight to start, and given the complete lack of morning sickness, coupled with the inability to exercise and the severe pain from the sciatica, I’d been medicating the only way I could: Tylenol and food. Every appointment, I asked if I should be concerned about my weight; every appointment, they’d say “Nah.”

Then, at the sixth month appointment (which was actually almost at the end of the sixth month), the doctor came in and began — you got it — lecturing me about my weight. Because of my condition, I’d had another appointment the week before. Now the same scale was telling me I’d gained six pounds in one week.

I stared at her, dumbfounded, for a few minutes, then asked my ex (who wasn’t “ex” at the time, of course) to leave the room. His eyes widened, and he glanced a little fearfully from me to her. Subtext: “Please don’t kill the doctor, honey. I don’t think we can afford the bail.” But he left, dutifully, and I turned what I hoped was my steeliest gaze to the doctor.

“For six months,” I began slowly, struggling to maintain control of my rage, “I have asked every single damned one of you people whether I should be concerned about my weight. For six months, every single damned one of you have told me ‘No.’ Now, when I gain six pounds in one week, you come in here lecturing me about biscuits for breakfast?! Are you crazy or just stupid?”

She pulled her skinny self up to her full stature of 5’2″ and stared down her nose at me, the red-faced whale in her exam room. “Well, I’m sorry, but I don’t think I can accept responsibility for your feelings.”

I nodded slowly. “Then I don’t think I can accept responsibility for your outrageously padded bills.”

I waddled out as gracefully as I could manage and paused only at the office manager’s desk to ask for my records to be copied and mailed to me as my new OBGYNs would need them. The woman stared at me wide-eyed, and then stammered, “Yeah, yes, of course, sure.”

A week later, she called to tell me the records were ready and asked if I’d mind picking them up in person because she wanted to find out more about why I was leaving. I obliged her with a full recounting. She leaned forward in her chair and said, “What if I could guarantee you that you wouldn’t have to see that doctor again? You’re far enough along that I can …”

I shook my head. “Sorry, but you have a systemic problem here. On my second visit, I told another doctor – your senior partner here, if I’m not mistaken – about my sciatica. He laughed it off, then told me to use a heating pad. When I told him that I’d read in several books that heat could damage the baby, he scowled and replied, ‘Who are you going to trust? Some book or me?’ There have been other incidents, too, that I’d normally overlook. But that last visit? Last straw. I’m gone.”

I took my file and I drove down the street to my new doctors — three women who saved my baby.

The Good Docs

These women were amazing, as I found out during my first exam with them. The first woman I saw was a beautiful German woman who still spoke with a slight accent. She listened – at first, wearing the typical professional mask of emotionless attention – but as I continued to explain what had happened, her eyes grew wider and the mask slipped. By the time I got to the doctor’s “can’t take responsibility for your feelings” line, her mouth had actually dropped open a bit. After I recounted the whole speech to the office manager, she actually said, “You go, girl!” In a German accent.

It was awesome. I knew I was home. (She also ran some bloodwork to rule out insidious causes of the weight gain; ultimately, it was chalked up to a borderline hypertension and water retention, something I should have known about a lot sooner, and would have, had the first doctor actually paid attention to the problem, instead of focusing on her attempts to shame me.)

My next appointment was with a short woman my age who was eight months pregnant with twins herself. She could barely reach my stomach when I lay down on the exam table. That was funny.

Then the next visit, they increased my appointments to every other week, and I met Doc #3 – a tall, gorgeous African-American woman who could as easily have been a model. She had me howling with laughter from tales of her own labor and delivery of three kids.

And then, finally, my beautiful doctors told me that we had to consider induction. My princess was growing well — a little too well, in fact — and they were concerned about my ability to push her out if she got any bigger.

Labor, Aptly Named

I checked into the hospital on a Thursday morning — ironically enough, my best friend’s birthday (even more ironic because she, too, was pregnant and would end up giving birth to a baby girl two weeks later – on my birthday). Within half an hour, I was hooked up to a pitocin drip and had a long strip of hormone-cream-soaked gauze shoved up my vagina. (Sorry, guys.)

And we waited.

And waited.

And waited.

Twenty-four hours passed. Then thirty-six.

Then the fun really began. The contractions were coming every minute or so. I was well and truly laboring. And mother of God, it hurt. Not so much the contractions, but the back pain that followed the contractions by thirty to forty-five seconds. I kept insisting something was wrong, and everyone – including my otherwise-awesome mother – basically patted me on the head and told me to tough it out.

“You people suck,” I moaned. (I consider it a huge source of personal pride that this was the worst thing I said during the entire ordeal.)

They tried Stadol. I hallucinated. They gave me epidurals. I enjoyed a brief respite — really brief, like thirty minutes, and then it just stopped working. Twice.

At four in the morning on Saturday (forty hours after the pitocin drip had been started), my German doctor came in to talk to us.

“Your baby’s head is pushed right against the cervix, and as fast as you can dilate, it’s bruising and swelling the cervix shut. You haven’t progressed one centimeter in four hours – you’re still at seven, and you need to be at ten. Now, I can let you go another hour, if you want, but …”

“Cut me open now,” I hissed.

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